Tofs

What the charity does

Disseminating information to our membership via leaflets, our TOF Book, periodic newsletters, social media and website. Running conferences and other gatherings where patients and their families can learn about the condition, its causes, treatment and ongoing management. Provision of pastoral support. Liaising and collaborating, where appropriate, with medical professionals and researchers.

Charitable objects

The object for which the association is established is to provide relief to in need individuals (hereinafter referred to as “tof individuals”) suffering from tracheo oesophageal fistula, oesophageal atresia and oesophageal and related disorders including the vater association (hereinafter collectively referred to as "oesophageal disorders”) as well as the parents or guardians of such tof individuals by:providing or paying for items, services or facilities which are calculated to alleviate the suffering or assist the recovery of tof individuals where such items, services or facilities are not readily available to them from other sources;promoting contact between the families of tof individuals suffering from oesophageal disorders with a view to sharing management problems and solutions; andcollecting and disseminating information concerning oesophageal disorders in the care and treatment thereof

Area of benefit: Not Defined

Governing document: Memorandum and articles of association incorporated 3 december 1987.As amended by special resolution registered at companies house on 23 may 2016